Such medical research has included the breakthrough discovery of two genes (TSC1 and TSC2) that are known to cause the disorder. For more information on how you may wish to direct your gift, please see the other … Early diagnosis and intervention can help overcome developmental delays. The Abigail and Amelia Clinical Accelerator is named in honor of the Maginns’ granddaughters, both of whom are affected by TSC. Choisissez parmi des contenus premium Comedy For A Cure Benefiting The Tuberous Sclerosis Alliance Red Carpet de la plus haute qualité. Tumors in the eyes are not common but can present problems if they grow and block too much of the retina. The Tuberous Sclerosis Alliance has been formed to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. 2010: FDA approves the first drug (called Afinitor) designated to specifically treat SEGAs associated with TSC. Trouvez les Julianne Moore And Tiki Barber Along With Tuberous Sclerosis Alliance Host images et les photos d’actualités parfaites sur Getty Images. The Tuberous Sclerosis Alliance Support Community connects everyone affected by tuberous sclerosis complex for support and inspiration. What you need to know about TSC. TS Alliance leads and participates in first world-wide TSC Global Awareness Day, held May 15. The support you want.